Welcome to the HDCRC

The Huntington's Disease Clinical Research Center (HDCRC) is dedicated to serving the needs of those affected by Huntington's disease (HD). Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.


Support Our Work

ScienceDaily News 

  Outline bulletpoint iconMajor factor in development of Huntington's disease uncovered12/20/2014
 A major contributor to Huntington’s disease, a devastating progressive neurological condition that produces involuntary movements, emotional disturban...Read More

  Outline bulletpoint iconHuman skin cells reprogrammed directly into brain cells12/20/2014
 Scientists have described a way to convert human skin cells directly into a specific type of brain cell affected by Huntington’s disease, an ultimatel...Read More

At Risk for HD Blog

  Outline bulletpoint iconSharon’s inspirational journey with CrossFit in the fight against Huntington’s disease 12/9/2014
 With her indomitable spirit Sharon Shaffer has not given up the fight against Huntington’s disease, despite a decade of struggling with symptoms that ...Read More

  Outline bulletpoint iconAnother major supplement, creatine, proven ineffective in the fight against Huntington’s disease10/30/2014
 For the second time in less than three months, a widely taken and long-studied dietary supplement envisioned as a potential treatment for Huntington’s...Read More

  Outline bulletpoint iconOutrage over video of police’s rough handling of man with Huntington’s disease spurs calls for justice, awareness9/16/2014
 Amateur video has proven crucial to holding police officers accountable around the country.Now such video of a police encounter with a man suffering f...Read More

HDBuzz News

  Outline bulletpoint iconTurning skin cells into brain cells: a Huntington's disease research breakthrough?11/27/2014
 Scientists can now reprogram human skin cells to make working cells that resemble 'medium spiny neurons', the type of brain cell that is most ...Read More

  Outline bulletpoint iconHuntington's disease clinical trial announcement: huntingtin-lowering drug to enter Phase I trial in 201511/4/2014
 A new clinical trial just announced for 2015 aims to test a “huntingtin lowering” therapy, called an antisense oligonucleotide (ASO), that attacks mut...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.


The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

Clinical Trials

Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

See a list of current clinical trials.

Our Location

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

Tel: (858) 246-1254
Fax: (858) 246-1283

HDSA Center of Excellence