Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconHuntington's disease monkeys display progressive clinical changes and neurodegeneration5/26/2015
 A preclinical, large animal model of Huntington's disease has been developed for assessing new therapeutics, which could ultimately provide better tre...Read More

  Outline bulletpoint iconGene variant determines early or late onset of Huntington's disease5/26/2015
 A gene variant that influences whether Huntington’s disease breaks out earlier or later than expected has been identified by researchers. The findings...Read More

At Risk for HD Blog


  Outline bulletpoint iconThe search for Huntington's disease treatments is indeed ‘rocket science’ – and we can all help build the rocket5/20/2015
 For people facing Huntington’s disease and other devastating, untreatable conditions, the powerful wish for a cure can conjure up the image of an elat...Read More

  Outline bulletpoint iconDeciphering signals from Huntington’s disease brains in the search for treatments5/10/2015
 From coast to coast and around the world, scientists like Andrew F. Leuchter, M.D., and Michael Levine, Ph.D., are engaged in the quest for Huntington...Read More

  Outline bulletpoint iconThe Huntington’s disease community can’t afford to lose momentum4/20/2015
 The Huntington’s disease community can’t afford to lose momentum in the quest for treatments for this incurable disorder.As I noted in my last article...Read More

HDBuzz News


  Outline bulletpoint iconMeasuring harmful huntingtin protein in the brain’s bath water5/17/2015
 Exciting technologies such as gene silencing are being developed for the treatment of Huntington’s disease. Aside from waiting for disease progression...Read More

  Outline bulletpoint iconA faulty filter? Blood vessel changes in Huntington's disease5/13/2015
 Because brain cell death drives symptoms in Huntington’s disease, these cells steal the spotlight in disease-related research. But new research on th...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

 

Clinical Trials


Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

 

See a list of current clinical trials.

 

Our Location


 

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

 

Tel: (858) 246-1254
Fax: (858) 246-1283

 

HDSA Center of Excellence