Welcome to the HDCRC

The Huntington's Disease Clinical Research Center (HDCRC) is dedicated to serving the needs of those affected by Huntington's disease (HD). Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

 

Support Our Work

In the News 

At Risk for Huntington's Disease
 
  Outline bulletpoint iconAnother major supplement, creatine, proven ineffective in the fight against Huntington’s disease10/30/2014
 For the second time in less than three months, a widely taken and long-studied dietary supplement envisioned as a potential treatment for Huntington’s...Read More

  Outline bulletpoint iconOutrage over video of police’s rough handling of man with Huntington’s disease spurs calls for justice, awareness9/16/2014
 Amateur video has proven crucial to holding police officers accountable around the country.Now such video of a police encounter with a man suffering f...Read More

Huntington's Disease News -- ScienceDaily
 
  Outline bulletpoint iconMajor factor in development of Huntington's disease uncovered10/31/2014
 A major contributor to Huntington’s disease, a devastating progressive neurological condition that produces involuntary movements, emotional disturban...Read More

  Outline bulletpoint iconHuman skin cells reprogrammed directly into brain cells10/31/2014
 Scientists have described a way to convert human skin cells directly into a specific type of brain cell affected by Huntington’s disease, an ultimatel...Read More

HDBuzz (English)
 
  Outline bulletpoint iconLargest creatine clinical trial for Huntington's disease halted after 'futility' analysis10/29/2014
 CREST-E, the largest clinical trial of the dietary supplement creatine, has been terminated early because an early analysis of the results to date sho...Read More

  Outline bulletpoint iconShould we worry about a huntingtin invasion?10/27/2014
 New work in brain diseases like Alzheimer's suggests that brain cells called neurons might be 'catching' the sickness from their neighbors...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

 

 

 

Clinical Trials


 

Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

 

See a list of current clinical trials.

 

Our Location


 

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

 

Tel: (858) 246-1254
Fax: (858) 246-1283

 

 

HDSA Center of Excellence