Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconNovel proteins linked to Huntington's disease identified11/26/2015
 A new discovery about Huntington's disease has been made by researchers, showing that the gene that causes the fatal disorder makes an unexpected 'coc...Read More

  Outline bulletpoint iconPossible new treatment for neurodegenerative diseases found11/26/2015
 A well-established anti-epileptic drug could also be used as a treatment for neurodegenerative diseases, report scientists investigating the topic.

At Risk for HD Blog

  Outline bulletpoint iconWith more Huntington’s disease clinical trials, volunteers need help with comparison shopping11/24/2015
 After learning last month that some researchers believe the drug under study in the SIGNAL clinical trial might slow the progression of Huntington's d...Read More

  Outline bulletpoint iconMight I finally take part in a Huntington’s disease clinical trial? An update on the latest research11/1/2015
 In the 20 years of my family’s fight against Huntington’s disease – we discovered my mom had HD the day after Christmas of 1995 – I felt this past wee...Read More

  Outline bulletpoint iconHuntington’s disease patients get first dosing in historic Isis Pharmaceuticals’ gene-silencing drug trial10/19/2015
 Huntington’s disease patients in England have received the first dosing of an Isis Pharmaceuticals drug, ISIS-HTTRx,aimed at stopping the disease at i...Read More

HDBuzz News

  Outline bulletpoint iconA multiple sclerosis drug that works for Huntington's disease: the real deal or too good to be true?11/24/2015
 Thinking problems in Huntington’s disease take a huge toll from early in the disease. Now, new work suggests that a drug already approved by the FDA ...Read More

  Outline bulletpoint iconMapping the anatomy of HD: a whole-brain history11/4/2015
 Though many scientists have focused on damage to a part of the brain called the striatum as a source of HD symptoms, this is a narrow picture of what ...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.


The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Our Center News 

UCSD Named Center of Excellence

UC San Diego is one of only 29 centers nationwide to receive prestigious designation, which recognizes centers for their elite multidisciplinary approach to Huntington's disease care and research.

Read More

First Laquinimod Patient Enrolled

UC San Diego enrolls the world’s first patient in the LEGATO-HD trial, which explores an investigational multiple sclerosis drug for its potential to improve Huntington’s disease.

Read More

Clinical Trials

Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about current trials or studies.

Huntington's Disease


Our Location

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

Tel: (858) 246-1254
Fax: (858) 246-1283

HDSA Center of Excellence