Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconHuntington's disease: Therapeutic potential of triheptanoin confirmed3/26/2015
 The therapeutic potential of triheptanoin in 10 patients with Huntington's disease has been demonstrated by researchers. Huntington's disease is a gen...Read More

  Outline bulletpoint iconSynthetic oil drug may bring promise for Huntington’s disease3/26/2015
 A synthetic triglyceride oil called triheptanoin may provide hope for people with Huntington’s disease, an early study suggests.

At Risk for HD Blog

  Outline bulletpoint iconThe precious participation of the Huntington’s disease community in the quest for treatments: a report on the 2015 HD Therapeutics Conference3/24/2015
 As long-awaited clinical trials of new drug candidates for Huntington’s disease get underway, scientists have intensified collecting information from ...Read More

  Outline bulletpoint icon‘None of us are free until we are all free’: science and solidarity at the 10th Annual Huntington’s Disease Therapeutics Conference2/26/2015
  0 0 1 102 586 University of San Diego 4 1 687 14.0 Normal 0 false false false EN-US JA X-NONE ...Read More

  Outline bulletpoint icon‘Darkness replaced by hope and light’: taking stock of Huntington’s disease research2/23/2015
 As the Huntington’s disease community in 2015 enters a promising phase of clinical trials for remedies that might slow or halt the progression of the ...Read More

HDBuzz News

  Outline bulletpoint iconBuilding a Better Mouse(trap): A New Model of Huntington’s Disease3/16/2015
 Most research on Huntington’s disease is done using animal models that mimic the human disease. However, these models typically recreate only a few o...Read More

  Outline bulletpoint iconTaking new targets to the bank: the DNA repair protein ‘ATM’ is overactive in Huntington's disease3/8/2015
 A recent study by the Yang lab at UCLA points to a new idea for preventing damage to neurons in Huntington’s disease. The strategy is to tone down an ...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.


The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 


Clinical Trials

Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.


See a list of current clinical trials.


Our Location


Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037


Tel: (858) 246-1254
Fax: (858) 246-1283


HDSA Center of Excellence