Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconHuntington's disease: Therapeutic potential of triheptanoin confirmed3/3/2015
 The therapeutic potential of triheptanoin in 10 patients with Huntington's disease has been demonstrated by researchers. Huntington's disease is a gen...Read More

  Outline bulletpoint iconSynthetic oil drug may bring promise for Huntington’s disease3/3/2015
 A synthetic triglyceride oil called triheptanoin may provide hope for people with Huntington’s disease, an early study suggests.

At Risk for HD Blog


  Outline bulletpoint icon‘None of us are free until we are all free’: science and solidarity at the 10th Annual Huntington’s Disease Therapeutics Conference2/26/2015
  0 0 1 102 586 University of San Diego 4 1 687 14.0 Normal 0 false false false EN-US JA X-NONE ...Read More

  Outline bulletpoint icon‘Darkness replaced by hope and light’: taking stock of Huntington’s disease research2/23/2015
 As the Huntington’s disease community in 2015 enters a promising phase of clinical trials for remedies that might slow or halt the progression of the ...Read More

  Outline bulletpoint iconHuntington’s disease patients ‘feel better’ after taking Auspex compound to control chorea in clinical trial2/3/2015
 Huntington’s disease patients in a recently concluded clinical trial for a potential new drug to control the disease’s characteristic involuntary move...Read More

HDBuzz News


  Outline bulletpoint icon2015 Huntington's Disease Therapeutics Conference: Day 22/26/2015
 Our second update from the Annual Huntington's Disease Therapeutics Conference.Wednesday: huntingtin-lowering drugs09:03 - This morning's sess...Read More

  Outline bulletpoint icon2015 Huntington's Disease Therapeutics Conference: Day 12/25/2015
 The first of our special reports from the Annual Huntington's Disease Therapeutics Conference in Palm Springs – the biggest meeting of HD scientis...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

 

Clinical Trials


Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

 

See a list of current clinical trials.

 

Our Location


 

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

 

Tel: (858) 246-1254
Fax: (858) 246-1283

 

HDSA Center of Excellence