Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconPolyglutamine repeats play key role in functional development of cells10/5/2015
 Variable polyglutamine repeats in the DNA tune the function of the protein in which they reside, scientists report. To date, these repeats were known ...Read More

  Outline bulletpoint iconScientists adopt new strategy to find Huntington's disease therapies10/5/2015
 Scientists searched the chromosomes of more than 4,000 Huntington's disease patients and found that DNA repair genes may determine when the neurologic...Read More

At Risk for HD Blog

  Outline bulletpoint iconAt key FDA meeting, Huntington's disease community insists on faster search for treatments9/30/2015
 The Huntington’s disease community sent a powerful message to the U.S. Food and Drug Administration (FDA) at the September 22 meeting on HD patient-fo...Read More

  Outline bulletpoint iconAs he lay dying: FDA and Huntington’s disease families meet to ponder potential treatments9/18/2015
 On Tuesday, September 22, when the U.S. Food and Drug Administration (FDA) focuses on Huntington’s disease drug development at a meeting with affected...Read More

  Outline bulletpoint iconNew film unmasks the raw reality of Huntington’s disease9/4/2015
 A new, award-winning documentary film, The Huntington’s Disease Project: Removing the Mask, reveals the raw reality of HD so thoroughly and authentica...Read More

HDBuzz News

  Outline bulletpoint iconA Few Bad Seeds: Using Brain Fluid to Grow Clumps in Brain Cells9/15/2015
 It’s like gardening gone wrong: scientists can sprinkle Huntington’s protein on the outside of laboratory-grown brain cells and make sticky, potential...Read More

  Outline bulletpoint iconNew tool to measure outcomes in Huntington’s Disease clinical trials9/3/2015
 When patients participate in clinical trials, there needs to be some type of readout to determine whether the new treatment worked. It’s important to ...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.


The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Our Center News 

UCSD Named Center of Excellence

UC San Diego is one of only 29 centers nationwide to receive prestigious designation, which recognizes centers for their elite multidisciplinary approach to Huntington's disease care and research.

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First Laquinimod Patient Enrolled

UC San Diego enrolls the world’s first patient in the LEGATO-HD trial, which explores an investigational multiple sclerosis drug for its potential to improve Huntington’s disease.

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Clinical Trials

Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about current trials or studies.

Huntington's Disease


Our Location

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

Tel: (858) 246-1254
Fax: (858) 246-1283

HDSA Center of Excellence