Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconMajor vascular anomalies found in brains of people with Huntington's disease4/20/2015
 Significant vascular changes in the brains of people with Huntington's disease have been identified by researchers. This breakthrough will have signif...Read More

  Outline bulletpoint iconNew test measures deadly protein in Huntington's disease patients' spinal fluid4/20/2015
 A new test has been able to measure for the first time the build-up of a harmful mutant protein in the nervous system of patients during the progressi...Read More

At Risk for HD Blog


  Outline bulletpoint iconThe Huntington’s disease community can’t afford to lose momentum4/20/2015
 The Huntington’s disease community can’t afford to lose momentum in the quest for treatments for this incurable disorder.As I noted in my last article...Read More

  Outline bulletpoint iconEngaging a ‘scared population’ of Huntington’s disease families by respecting their journeys4/7/2015
 The number of clinical trials for Huntington’s disease treatments has increased exponentially, pushing up the demand for volunteers. Now advocates ask...Read More

  Outline bulletpoint iconThe precious participation of the Huntington’s disease community in the quest for treatments: a report on the 2015 HD Therapeutics Conference3/24/2015
 As long-awaited clinical trials of new drug candidates for Huntington’s disease get underway, scientists have intensified collecting information from ...Read More

HDBuzz News


  Outline bulletpoint iconLighting the way: A new biomarker for Huntington’s disease4/19/2015
 In Huntington’s disease, brain cells begin dying long before disease symptoms arise. Unfortunately, good tools for monitoring early brain changes – a...Read More

  Outline bulletpoint iconNovel research technique suggests an antioxidant gene protects vulnerable neurons4/6/2015
 Researchers have developed a new technique that allows them to screen for genes that could contribute to the progression of Huntington’s disease and o...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

 

Clinical Trials


Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

 

See a list of current clinical trials.

 

Our Location


 

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

 

Tel: (858) 246-1254
Fax: (858) 246-1283

 

HDSA Center of Excellence