Welcome to the HDCRC

The Huntington's Disease Clinical Research Center (HDCRC) is dedicated to serving the needs of those affected by Huntington's disease (HD). Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

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In the News 

Prana Reports Phase II Results for Reach2HD Clinical Trial
February 18, 2014: Prana Biotechnology has announced the results of its Reach2HD Phase 2 clinical trial investigating PBT2 as a treatment for Huntington disease. The double-blind, placebo-controlled study was conducted by the Huntington Study Group at research sites in the United States and Australia. The study enrolled 109 individuals with Huntington disease who were randomly assigned to receive daily doses of either PBT2 250mg, PBT2 100mg, or placebo for 26 weeks.
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Creatine Supplement to Slow Huntington's Disease
February 12, 2014: The first clinical trial of a drug intended to delay the onset of symptoms of Huntington’s disease (HD) reveals that high-dose treatment with the nutritional supplement creatine was safe and well tolerated by most study participants. In addition, neuroimaging showed a treatment-associated slowing of regional brain atrophy, evidence that creatine might slow the progression of presymptomatic HD.
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Upcoming Events


Shoot to Cure HD

June 14, 2014: Since 2002, HDSA-San Diego has put on the town’s best outdoor party, the Shoot to Cure HD! Last year's Shoot to Cure HD was no exception, as more than 500 people came out to support HD on Saturday, June 15 at Petco Park. Guests were treated to food and drinks from more than 20 of San Diego’s favorite eateries, tickets to the Padres game that evening, a commemorative Shoot T-shirt, and moments they’ll never forget.

Flyer and Registration

Team 2 Cure HD Golf Tournament

August 22, 2014:The 7th Annual Team2Cure HD Golf Tournament will be held at Steele Canyon Golf Resort in Jamula, CA. There will be awards for closest to the pin, longest drive, straightest drive, and 1st, 2nd, and 3rd place teams.

Flyer and Registration

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Huntington's Disease 

Clinical Trials


Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about specific trials or studies.

See a list of current clinical trials.

Our Location


Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

Tel: (858) 246-1254
Fax: (858) 246-1283

HDSA Center of Excellence