Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconStrict eating schedule can lower Huntington disease protein in mice3/18/2018
 New research suggests that following a strict eating schedule can help clear away the protein responsible for Huntington disease in mice.

  Outline bulletpoint iconDecoding the structure of huntingtin3/18/2018
 Determining the three dimensional structure of the huntingtin protein could help develop new treatments for Huntington's disease.

At Risk for HD Blog

  Outline bulletpoint iconIn chronicling the quest to cure Huntington’s disease, a whirlwind of emotions3/14/2018
 Covering the 13thAnnual Huntington’s Disease Therapeutics Conference left me with immense hope about potential treatments but also, as in the pas...Read More

  Outline bulletpoint iconThe best news for the Huntington's disease community since the discovery of the gene: Ionis trial data revealed, Roche confirms jump to Phase 33/2/2018
 Researchers revealed impressive, if not conclusive, additional information at CHDI Foundation's 13th Annual Huntington’s Disease Therapeutics Conferen...Read More

  Outline bulletpoint iconOverflow audience at 13th annual Huntington's Disease Therapeutics Conference2/27/2018
 With more than 350 Huntington’s disease researchers and pharmaceutical executives in attendance, the 13th annual HD Therapeutics Conference got underw...Read More

HDBuzz News

  Outline bulletpoint iconHuntington's disease therapeutics conference 2018 - day 33/2/2018
 Good morning from the final day of the 2018 HD Therapeutics Conference! Two sessions today, the first focused on the protein made from the HD gene. Th...Read More

  Outline bulletpoint iconHuntington's disease therapeutics conference 2018 - day 23/1/2018
 Updates from day 2 of the Huntington's Disease Therapeutics Conference focusing on DNA repair in HD.Wednesday morning - DNA repair in HDGood morni...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.


The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Our Center News 

UCSD Named Center of Excellence

UC San Diego is one of only 29 centers nationwide to receive prestigious designation, which recognizes centers for their elite multidisciplinary approach to Huntington's disease care and research.

Read More

First Laquinimod Patient Enrolled

UC San Diego enrolls the world’s first patient in the LEGATO-HD trial, which explores an investigational multiple sclerosis drug for its potential to improve Huntington’s disease.

Read More

Clinical Trials

Please contact Jody Corey-Bloom, MD, PhD, at (858) 249-0568 or jcoreybloom@ucsd.edu to confirm clinical trial or study availability and/or to get further information about current trials or studies.

Huntington's Disease


Our Location

Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
9444 Medical Center Dr., Suite 1-100
La Jolla, CA 92037

Tel: (858) 249-0568
Fax: (858) 249-0573

HDSA Center of Excellence