Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconStructure of brain plaques in Huntington's disease described2/8/2016
 The core of the protein clumps found in the brains of people with Huntington's disease have a distinctive structure, a finding that could shed light o...Read More

  Outline bulletpoint iconExisting compound holds promise for reducing Huntington's disease progression2/8/2016
 Currently, there is no treatment to halt the progression of Huntington's disease (HD), a fatal genetic disorder that slowly robs sufferers of their ph...Read More

At Risk for HD Blog


  Outline bulletpoint iconDefeating Huntington’s disease starts with taking care of yourself and joining Enroll-HD1/16/2016
 For those of us affected by Huntington’s disease or at risk for it, the fight against the disorder begins by taking care of ourselves.This idea occurr...Read More

  Outline bulletpoint iconA key Huntington’s disease trial remedy gets Orphan Drug Designation, as yet another young life is cut short1/8/2016
 Ionis Pharmaceuticals, Inc. (formerly Isis Pharmaceuticals) has achieved another milestone in its search for a treatment for Huntington’s disease: on ...Read More

  Outline bulletpoint icon‘Concussion’: advocating for the truth about brain diseases12/30/2015
 In this era of growing concern over sports injuries, increased prevalence of neurological diseases, and pioneering brain research, the just-released m...Read More

HDBuzz News


  Outline bulletpoint iconHarnessing the power of viruses to treat Huntington's disease 2/3/2016
 New therapies for disorders like Huntington’s disease are on the way, but getting the drugs to enter brain cells can be a major challenge. A group of ...Read More

  Outline bulletpoint iconThrough a Broader Lens: Looking at Non-Motor Symptoms in HD1/24/2016
 Common depictions of HD emphasizing only its movement symptoms paint an incomplete picture of the real disease. HD causes both motor and non-motor sy...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Our Center News 

UCSD Named Center of Excellence

UC San Diego is one of only 29 centers nationwide to receive prestigious designation, which recognizes centers for their elite multidisciplinary approach to Huntington's disease care and research.

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First Laquinimod Patient Enrolled

UC San Diego enrolls the world’s first patient in the LEGATO-HD trial, which explores an investigational multiple sclerosis drug for its potential to improve Huntington’s disease.

Read More

Clinical Trials


Please contact Andrew Herndon at (858) 246-1254 or arherndon@ucsd.edu to confirm clinical trial or study availability and/or to get further information about current trials or studies.

Huntington's Disease


 

Our Location


Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
8950 Villa La Jolla Dr., Suite C129 (Building C)
La Jolla, CA 92037

Tel: (858) 246-1254
Fax: (858) 246-1283

HDSA Center of Excellence