Welcome to the HDCRC

Our mission is to provide quality HD care, services, and education to patients, families, and community professionals; to increase awareness of HD in entire communities; and to conduct research contributing to future treatments or cures.

Subscribe to our newsletter now and get:

  • Clinical trial updates
  • HD resource packets
  • Local event information

ScienceDaily News 

  Outline bulletpoint iconResearchers discover system that could reduce neurodegeneration in Huntington's disease8/17/2018
 Neuroscientists have made an important step towards understanding the mechanisms that cause the neurodegenerative disorder Huntington's disease. Parti...Read More

  Outline bulletpoint iconPowerful new approach helps understand molecular alterations in neurological disease8/17/2018
 Scientists have developed a high-throughput, multi-pronged approach that integrates laboratory experiments, data from published literature and network...Read More

At Risk for HD Blog


  Outline bulletpoint iconIn Harriet’s tragic death, the vulnerability caused by Huntington’s disease – but also the story of a beautiful soul7/7/2018
 On the morning of April 8, while out for her cherished daily walk, 71-year-old Huntington’s disease patient Harriet Hartl died tragically after being ...Read More

  Outline bulletpoint iconFree from the threat of Huntington’s disease, our ‘miracle baby’ turns 185/21/2018
 I dedicate this article to my daughter Bianca Serbin.In June, our “miracle baby,” who tested negative in the womb for Huntington’s disease in 2000, wi...Read More

  Outline bulletpoint iconNew Ionis data show positive trends in clinical measures of Huntington’s disease drug trial volunteers4/26/2018
 Exploratory analysis of new data showed positive trends in several clinical signs of Huntington’s disease in the recently concluded Ionis Pharmaceutic...Read More

HDBuzz News


  Outline bulletpoint iconDisappointing news from LEGATO-HD trial of laquinimod in Huntington's disease8/2/2018
 The LEGATO-HD trial of laquinimod to slow progression of Huntington's disease did not meet its primary endpoint. What's an endpoint, and what ...Read More

  Outline bulletpoint iconHDBuzz Enrolls in Enroll-HD7/31/2018
 The Enroll-HD study is the largest clinical study in Huntington's Disease ever. What's it all about, and why is Enroll-HD so important in the ...Read More

Our Services 

Medical Services

The GHPP Clinic is staffed by a multidisciplinary team of medical professionals who specialize in the diagnosis and treatment of persons affected with HD. The team includes neurologists, a psychiatrist, clinical nurse specialist, neuropsychologists, a social worker, center coordinator, and dietician. Clinic visits include complementary scheduling for physical therapy, occupational therapy, speech and swallowing evaluations, mobility equipment referrals, and other recurring services.

Family and Caregiver Support

The HDCRC provides services that address issues relating to the care of someone with HD. Assistance may include: general information and referrals, providing education and educational materials, support groups, genetic counseling, placement issues, in-service trainings in care facilities upon request of family member or care facility.

Genetic Testing and Counseling

The HDCRC assists individuals at-risk for inheriting HD, who have made a decision to be tested or are contemplating being tested for the HD gene mutation. Individuals are screened and counseled for issues such as: ability to cope with positive or negative results, relationships with family and friends, insurance planning, marriage and/or family planning, legal issues, career decisions, and support system.

Professional and Community Outreach

The goals of our professional education program are to expose healthcare professionals, police officers, school counselors, social workers, and other community members to a multidisciplinary approach to the care and needs of HD patients, to broaden their perspective, and to make them aware of the problems in caring for patients with HD, which lie outside of their traditional fields. Consultation and educational opportunities are provided to community professionals caring for patients and families affected by HD.

Research

The HDCRC is active in clinical HD research. Participants include those affected with HD, individuals at-risk for HD, family members or friends, and volunteer research subjects. Studies include clinical drug trials, observational trials, neuropsychological studies, and genetic research.

Our Center News 

UCSD Named Center of Excellence

UC San Diego is one of only 29 centers nationwide to receive prestigious designation, which recognizes centers for their elite multidisciplinary approach to Huntington's disease care and research.

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First Laquinimod Patient Enrolled

UC San Diego enrolls the world’s first patient in the LEGATO-HD trial, which explores an investigational multiple sclerosis drug for its potential to improve Huntington’s disease.

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Clinical Trials


Please contact Jody Corey-Bloom, MD, PhD, at (858) 249-0568 or jcoreybloom@ucsd.edu to confirm clinical trial or study availability and/or to get further information about current trials or studies.

Huntington's Disease


 

Our Location


Huntington's Disease Clinical Research Center
at the Shiley-Marcos ADRC
9444 Medical Center Dr., Suite 1-100
La Jolla, CA 92037

Tel: (858) 249-0568
Fax: (858) 249-0573

HDSA Center of Excellence