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Department of Neurosciences Department of Neurosciences

Huntington's Disease Support Group

Our HDSA Center of Excellence sponsors a monthly HD Support Group for individuals who are at-risk for developing HD or diagnosed with HD, as well as their families and other concerned parties. Speakers such as healthcare professionals, legal experts, and housing and placement specialists give talks to the group on resources, coping mechanisms, and other topics.

Schedule

IN-PERSON HD POSITIVE GROUP & CAREGIVERS GROUP SAN DIEGO AREA 
When: The last Tuesday of each month from 5-6:30 pm. Refreshments and socializing are from 5:00 to 5:30 pm. Meeting is from 5:30 to 6:30 pm.
Dates: January 27th, February 24th, March 31st, April 28th , May 26th, June 30th, July 28th, August 25th, September 29th, October 27th, November 24th

Where: UCSD Medical Center, 9444 Medical Center Drive, La Jolla, CA 92037

From south: Exit I-5 at La Jolla Village Dr. and make a left (right if coming from north) at the stop light. Make a right at the second light: Villa La Jolla Drive. Drive to the end of Villa La Jolla and make a right turn at Gilman Drive, proceed onto Medical Center Drive. Make a left directly after crossing bridge over I-5. Park in spots marked for HD support group.

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CALIFORNIA HD PERSON ONLINE VIDEO SUPPORT GROUP
Who: We invite all persons with HD Symptoms to join this support group, which will include participants across Southern California. Come join us to connect with other HD persons and discuss triumphs, challenges, ask questions, and get support from others that know what having HD is like! If you live outside California, but receive HD care in CA, you are welcome to attend.
When: 3rd Tuesday of each month from 12:00 pm to 1:30 pm
Dates: January 20th, February 17th, March 17th, April 21st, May 19th, June 16th, July 21st, August 18th, September 15th, October 20th, November 17th, and December 15th

Click here to register. (You only need to register once. Once you register, you may join as often as is comfortable for you)  
 

SOUTHERN CALIFORNIA CAREGIVERS ONLINE VIDEO SUPPORT GROUP
Who: We invite all persons who are caregivers to individuals with HD to join this support group which will include participants across Southern California. Come join us to connect with other Caregivers and learn from one another's experiences. To register, email sreynolds@hdsa.org
When: Third Sunday of each month from 5:00 to 6:00 pm
Dates: January 18th, February 15th, March 15th, April 19th, May 17th, June 21st, July 19th, August 16th, September 20th, October 18th, and November 15th

 

CALIFORNIA HD BEREAVEMENT ONLINE VIDEO SUPPORT GROUP
Who
: This support group is open to any persons (18 & over), living in CA that are grieving the loss of an HD loved one. Often it is hard for others to understand or relate to the grief and loss our HD families experience and our hope is this group can provide a safe platform to openly discuss all aspects of grief/loss associated with the death of an HD loved one. "Death leaves a heartache no one can heal; love leaves a memory no one can steal." ~Author Unknown
Facilitators: Amy Slavin (HDSA Center of Excellence at UCLA), Susan Reynolds (OC and San Diego HDSA Social Worker), Elle Tadina (HDSA Center of Excellence at Northern California Kaiser)
For more information, please email sreynolds@hdsa.org. To register, click here.

When: 4th Tuesday of each month from 12:00 pm to 1:30 pm

Dates: January 27th, February 24th, March 24th, April 28th, May 26th, June 23rd, July 28th, August 25th, September 22nd, October 27th, and November 24th

SOUTHERN CALIFORNIA GENERAL GROUP FOR HDSA MEMBERS

Who: All persons who are living with HD, at risk for HD, or caring for someone with HD. To register, email sreynolds@hdsa.org.
When: 2nd Sunday of each month from 5:00 pm to 6:00 pm 
Dates: January 11th, February 8th, March 8th, April 12th, May 10th, June 14th, July 12th, August 9th, September 13th, October 11th, November 8th, December 13th