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Department of Neurosciences Department of Neurosciences

Huntington's Disease Support Group

Our HDSA Center of Excellence sponsors a monthly HD Support Group for individuals who are at-risk for developing HD or diagnosed with HD, as well as their families and other concerned parties. Speakers such as healthcare professionals, legal experts, and housing and placement specialists give talks to the group on resources, coping mechanisms, and other topics.

Schedule

IN-PERSON HD POSITIVE GROUP & CAREGIVERS GROUP SAN DIEGO AREA 
When: The last Tuesday of each month from 5-6:30 pm. Refreshments and socializing are from 5:00 to 5:30 pm. Meeting is from 5:30 to 6:30 pm.
Dates: January 28th, February 25th, March 25th, April 29th , May 27th, June 24th, July 29th, August 26th, September 30th, October 28th, November 25th

Where: UCSD Medical Center, 9444 Medical Center Drive, La Jolla, CA 92037

From south: Exit I-5 at La Jolla Village Dr. and make a left (right if coming from north) at the stop light. Make a right at the second light: Villa La Jolla Drive. Drive to the end of Villa La Jolla and make a right turn at Gilman Drive, proceed onto Medical Center Drive. Make a left directly after crossing bridge over I-5. Park in spots marked for HD support group.

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CALIFORNIA HD PERSON ONLINE VIDEO SUPPORT GROUP
Who: We invite all persons with HD Symptoms to join this support group, which will include participants across Southern California. Come join us to connect with other HD persons and discuss triumphs, challenges, ask questions, and get support from others that know what having HD is like! If you live outside California, but receive HD care in CA, you are welcome to attend.
When: 3rd Tuesday of each month from 12:00 pm to 1:30 pm
Dates: January 21st, February 18th, March 18th, April 15th, May 20th, June 17th, July 15th, August 19th, September 16th, October 21st, November 18th, and December 16th

Click here to register. (You only need to register once. Once you register, you may join as often as is comfortable for you)  
 

SOUTHERN CALIFORNIA CAREGIVERS ONLINE VIDEO SUPPORT GROUP
Who: We invite all persons who are caregivers to individuals with HD to join this support group which will include participants across Southern California. Come join us to connect with other Caregivers and learn from one another's experiences. To register, email sreynolds@hdsa.org
When: Third Sunday of each month from 5:00 to 6:00 pm
Dates: January 19th, February 16th, March 16th, April 20th, May 18th, June 15th, July 20th, August 17th, September 21st, October 19th, and November 16th

 

CALIFORNIA HD BEREAVEMENT ONLINE VIDEO SUPPORT GROUP
Who
: This support group is open to any persons (18 & over), living in CA that are grieving the loss of an HD loved one. Often it is hard for others to understand or relate to the grief and loss our HD families experience and our hope is this group can provide a safe platform to openly discuss all aspects of grief/loss associated with the death of an HD loved one. "Death leaves a heartache no one can heal; love leaves a memory no one can steal." ~Author Unknown
Facilitators: Amy Slavin (HDSA Center of Excellence at UCLA), Susan Reynolds (OC and San Diego HDSA Social Worker), Elle Tadina (HDSA Center of Excellence at Northern California Kaiser)
For more information, please email sreynolds@hdsa.org. To register, click here.

When: 4th Tuesday of each month from 12:00 pm to 1:30 pm

Dates: January 28th, February 25th, March 25th, April 22nd, May 27th, June 24th, July 22nd, August 26th, September 23rd, October 28th, and November 25th

SOUTHERN CALIFORNIA GENERAL GROUP FOR HDSA MEMBERS

Who: All persons who are living with HD, at risk for HD, or caring for someone with HD. To register, email sreynolds@hdsa.org.
When: 2nd Sunday of each month from 5:00 pm to 6:00 pm 
Dates: January 12th, February 9th, March 9th, April 13th, May 11th, June 8th, July 13th, August 10th, September 14th, October 12th, November 9th, December 14th